Links

Patient Associations

• Association Surrenales  http://asso.orpha.net/AGS/index2.html
• Medizinischer Informationsdienst zur Nebenniere für Ärzte und Patienten http://www.nebenniere.de/
• Die AGS-Eltern- und Patienteninitiative e.V.  https://www.ags-initiative.de
• The Association for Multiple Endocrine Neoplasia Disorders (AMEND)  http://www.amend.org.uk/

National Networks for the Study of Adrenal Tumors

• German Adrenal Network Improving Treatment and Medical Education (GANIMED)   http://www.ganimed-net.de/?lang=EN
• Das Netzwerk Hypophysen- und Nebennierenerkrankungen e.V  http://www.glandula-online.de/cms/cms/front_content.php
• Società Italiana dell'Ipertensione Arteriosa http://siia.it/

Pheochromocytoma - Further Links:

• ORPHANET - a database dedicated to information on rare diseases http://www.orpha.net/consor/cgi-bin/index.php?lng=EN
• Pressor - Pheochromocytoma Research and Support http://www.pressor.org
• Mayo Clinic Information on Pheochromocytoma http://www.mayoclinic.com/health/pheochromocytoma/DS00569

Endocrinology Associations 

• Società Italiana Di Endocrinologia http://www.societaitalianadiendocrinologia.it
• Societa' Italiana di Endocrinochirurgia http://www.siecitalia.eu/
• The Society for Endocrinoogy  http://www.endocrinology.org/
• Deutsche Gesellschaft für Endokrinologie (DGE) http://www.endokrinologie.net

Registries

• Nebennierenkarzinom-Register  http://www.nebennierenkarzinom.de
• CONN-Register http://www.conn-register.de

Other 

• First International Randomized Trial (FIRMACT) http://www.firm-act.org
• European Society of Hypertension  http://www.eshonline.org
• The European Science Foundation (ESF) http://www.esf.org